U.S. Leukodystrophy

The listings in this category contain leukodystrophy resources in the United States, offering information on these rare genetic disorders. These resources include specialized clinics, treatment guides, and patient support groups. List your leukodystrophy resource to connect with individuals seeking help for leukodystrophies.

• Bethanys Hope Foundation - A worldwide support site serving families dealing with Metachromatic Leukodystrophy disease (MLD) and other leukodystrophies.
  https://bethanyshope.org/
  
• United Leukodystrophy Foundation - Info on adrenoleukodystrophy, alexander disease, canavan, krabbes disease, metachromatic leukodystrophy, and refsum's disease.
  https://ulf.org/