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- Bethanys Hope Foundation - A worldwide support site serving families dealing with Metachromatic Leukodystrophy disease (MLD) and other leukodystrophies.
https://bethanyshope.org/
- United Leukodystrophy Foundation - Info on adrenoleukodystrophy, alexander disease, canavan, krabbes disease, metachromatic leukodystrophy, and refsum's disease.
https://ulf.org/
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